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Category Archives: Oh Chromosomes:

Oh Chromosomes: “Pain”

as dane and lila sleep this monday morning away, i decided have some “me time” and dig out the book bloom and get my reading on. it’s been so busy with easter, church, and family time..i haven’t been able to read my book lately!  anyways i’ve noticed that kelle talks about the pain in our…

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Oh Chromosomes:Mosaicism

ok, it’s time for a biology lesson! i posted the picture below on my facebook the other day and i made a comment that the image portrayed lila’s “fancy skin.” i pretty much noticed it when lila was in the NICU and as miss lila grows it’s becoming much more noticeable (which i’m assuming because she’s growing,…

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Oh DARN chromosomes: Bad Start

i was rocking lila this morning, while she was in and out of seizures..waiting for the valium to kick in. i promised her that one day (when she’s old and gray), she’ll go to heaven and God will give her those 11 genes back and rearrange all her chromosomes so that she won’t have to…

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oh Chromosomes: Toy Hitting

the child development therapist was here today and boy was lila mean! ha! the therapist was sitting down with lila, and the she had lila laying down on her side. meanwhile i gave lila a toy to play with and she had it up in the air and would bring her hand (with the toy) down quick…

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Oh Chromosomes: A Day Full Of Doctor Visits.

we had a LONG day full of doctor visits in portland. we started off at the eye specialist..early at 10am. her eyes checked out healthy and normal! yaaay! and no glasses! Li had to wear glasses outside because her eyes were dilated. it was SUNNY, bright and HOT outside! i had to use the AC…

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